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We just got a dementia diagnosis

What to do in the first month, and what can wait longer than you think.

Quick answer

What to do in the first month, and what can wait longer than you think.

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The first month after a diagnosis is mostly about slowing down. Very little has to be decided immediately.

Short answer

What to do in the first month, and what can wait longer than you think.

What to do, in order

  1. Slow down. Very little has to be decided this month.
  2. Get the specific diagnosis. Alzheimer's, vascular dementia, Lewy body and frontotemporal dementia progress differently and respond differently to medication.
  3. Do the legal work now, while capacity is clear. Power of attorney, medical power of attorney, directives.
  4. Call the Area Agency on Aging serving your county. Triangle J/Central Pines for Wake, Durham, Orange, Chatham, Johnston or Lee; Kerr-Tar for Franklin; Mid-Carolina for Harnett.
  5. Understand what memory care will require later. North Carolina requires a Special Care Unit disclosure statement under G.S. 131D-8, not a separate certification.

Questions families ask

Is Durham County covered by the same Area Agency on Aging as Wake, and what's the main hospital system there?

Yes — Durham County is covered by the same Central Pines Regional Council (Triangle J) Area Agency on Aging as Wake County, reachable at 1-800-310-9777, which provides the regional Long-Term Care Ombudsman Program and options counseling for Durham families. Durham's dominant hospital system is Duke Health, anchored by Duke University Hospital and Duke Regional Hospital, including Duke's geriatrics and memory-care specialty programs. For suspected abuse or neglect of an older adult in Durham County, contact Durham County DSS Adult Services directly, since Adult Protective Services is administered at the county level rather than through a single statewide number.

How does population growth in Durham affect senior care wait times and availability?

Durham has grown rapidly along with the rest of the Triangle, and that growth has pushed demand for both home care aides and assisted living beds, meaning families should expect to plan further ahead than they might have a decade ago, particularly for memory care beds with a licensed Special Care Unit designation. Duke Health's size helps somewhat on the medical side, since it supports a large network of home health and rehab referral partners, but availability still varies by neighborhood and facility. Contacting the Central Pines/Triangle J Area Agency on Aging (1-800-310-9777) early — before a crisis — for current local waitlist information is the best way to plan realistically.

What resources are available for seniors in Orange County, and does Chapel Hill's college-town character affect care options?

Orange County, including Chapel Hill, Carrboro, and Hillsborough, is served by the Central Pines Regional Council (Triangle J) Area Agency on Aging at 1-800-310-9777 for options counseling, information and referral, and the regional Long-Term Care Ombudsman Program. UNC Health, anchored by UNC Medical Center in Chapel Hill, is the county's dominant hospital system and runs academic geriatrics programs that draw patients from across the Triangle. Orange County has a notably large and well-educated senior population tied to UNC-Chapel Hill, which supports a strong concentration of continuing-care retirement communities in the area; for suspected abuse or neglect, contact Orange County DSS Adult Services.

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