Short answerIf private funds run out, the options generally are a Medicaid HCBS waiver for care inside a licensed community, Medicaid nursing facility coverage, or moving to a community that holds a waiver provider agreement. Confirm your state's specific programs before relying on this.
Ask before you move in, not after
This is the single most consequential question families skip. A community that does not hold a
Medicaid waiver provider agreement will ask your parent to leave when private funds are exhausted
— often with short notice, at the point when moving is hardest.
Ask directly: do you hold a Medicaid waiver provider agreement, and how many current residents
use it? A community can technically hold an agreement and still have no waiver capacity available.
How families pay for care. NC's CAP/DA waiver pays for in-home services only; State/County Special Assistance (not a Medicaid waiver) helps with adult care home room and board.
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The local long-term care ombudsman. NC Division of Aging and Adult Services (NCDHHS) runs the Office of the State Long-Term Care Ombudsman, with 16 Offices of the Regional Long-Term Care Ombudsman housed within regional Area Agencies on Aging. covers Wake, Durham, Orange, Chatham, Johnston, Lee and Moore counties at 1-800-310-9777 (Central Pines Regional Council / Triangle J region toll-free Ombudsman line, covering Wake, Durham, Orange, Chatham, Johnston, Lee, and Moore counties); Franklin County is a different region.
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